PANS/PANDAS Counseling Support for Families

Helping families find safety, support, and hope in the darkness of this disease

Understanding PANS and PANDAS: A Debilitating Neuroimmune Condition

PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections) is a debilitating neuroimmune medical condition that manifests with behavioral and psychiatric symptoms. 

How Counseling Supports PANS/PANDAS Families

While counseling cannot stop P/P flares, counseling can tremendously support P/P families as they face the darkness of this disease. 

support includes:

  • Safety with Sharing Your Story
  • Learning De-Escalation Techniques
  • Parent Skill Support
  • Processing Emotions & Trauma
  • Education & Treatment Options

Support for the P/P Kiddo, Parents, and Family

P/P causes distress and trauma for the p/p kiddo, parents, and family.  RISE Counseling & Play Therapy supports P/P families daily.  Every year on October 9th, my family and I attend PANS/PANDAS awareness day at the capitol to advocate.  RISE Counseling & Play Therapy will continue to spread awareness, advocate, support P/P families, and hold hope that the next family may not have to endure as much.

The Lord is close to the brokenhearted
    and saves those who are crushed in spirit.

Psalm 34:18

12 Truths Every PANS/PANDAS Parent Knows

Adapted with credit from the Neuroimmune Foundation. All rights reserved to original authors.

  • AYou’ll feel like you’re speed dating doctors.
  • AYou’ll leave appointments frustrated by ignorance.
  • ASome people will think you need help.
  • AYour parenting will be criticized.
  • AMedical costs will strain your finances.
  • AEvery relationship in your life will be tested.
  • AYou'll lose friends.
  • AYou'll lose family.
  • AYou’ll gain friends who become like family.
  • AYou’ll learn more than most doctors.
  • AYou’ll keep going, no matter what.
  • AIt will all be worth it.

Dear P/P parent,

You are not alone in this fight. Here you are seen and always believed. The burden you carry is insurmountable. The odds may be against you, but your love will endure all.

As a P/P mom with a kiddo in recovery, I know all too well the pain and trauma you experience. Today, let my hope be strong enough for your family. This darkness will not last forever. Every case is unique, and we will work hard to figure this out. There is community and support for you and your family.

Together, we will not stop fighting for the health of your child.
We are warriors!

PANS/PANDAS PROFESSIONAL CONSULTATION

RISE Counseling & Play Therapy offers PANS/PANDAS consultation services to other professionals who are looking to learn more about supporting P/P clients.  Consultation services include but are not limited to the following: generalized counseling support information for p/p clients and families, p/p education, p/p resources, and specific case consultation (ROI on file must be verified).